als

Amyotrophic Lateral Sclerosis

Kelly Hitchner

Administrative Manager

Kelly completed her Bachelor of Science degree in molecular biology at the University of California, San Diego in 2011. Kelly has four years of research experience at the Dorris Neuroscience Center at The Scripps Research Institute and the Institute of Regenerative Medicine at UCSF. She joined the UCSF Memory and Aging Center in 2013 and works with Dr. William Seeley to manage the Neurodegenerative Disease Brain Bank.

Contact Us

For more information about the Neurodegenerative Disease Brain Bank (NDBB) and its tissue sharing procedure, please contact the administrative manager. For questions about the Autopsy Program, please contact the autopsy coordinator.

For more information about the Neurodegenerative Disease Brain Bank (NDBB) and its tissue sharing procedure, please contact the administrative manager at 415-502-7459.

For questions about the Autopsy Program, please contact the autopsy coordinator at 415-476-1681 or autopsy@memory.ucsf.edu.

Neurodegenerative Disease Brain Bank (NDBB) Director
William Seeley, MD
Associate Professor of Neurology
UCSF Memory and Aging Center
415-476-2793
wseeley@memory.ucsf.edu

What We're Learning

Many new discoveries have been published in peer-reviewed papers using data from the Neurodegenerative Disease Brain Bank (NDBB).

Recent publications using data from the Neurodegenerative Disease Brain Bank (NDBB) include:

  1. Boxer AL, Garbutt S, Seeley WW, Jafari A, Heuer HW, Mirsky J, Hellmuth J, Trojanowski JQ, Huang E, Dearmond S, Neuhaus J, Miller BL. Saccade abnormalities in autopsy-confirmed frontotemporal lobar degeneration and Alzheimer disease. Arch Neurol. 2012;69:509-17.

Request Tissue

Tissue is shared with investigators whose research is of superb scientific quality and occurs under the provision of a Material Transfer Agreement (MTA).

Tissue is shared with investigators whose research is of superb scientific quality and occurs under the provision of a Material Transfer Agreement (MTA). The MTA restricts the use of tissue to one study, prohibits the transfer of tissue to anyone outside the recipient organization without prior written approval of the NDBB, and requires the recipient organization to cite the contribution of the NDBB in any publications resulting from the use of the tissue. MTA request applications are reviewed by the UCSF Memory and Aging Center Resource Request Committee.

Brain Donation

Brain donation provides individuals the opportunity to help others affected by dementia by advancing our scientific understanding of neurodegenerative diseases and healthy aging. We honor the gift of donation and treat donors, their bereaved families, and all tissue with care and respect.

Why donate?

Brain donation provides individuals the opportunity to help others affected by dementia by advancing our scientific understanding of neurodegenerative diseases and healthy aging. We honor the gift of donation and treat donors, their bereaved families, and all tissue with care and respect.

Examining the brain after death is currently the only way to obtain a definitive diagnosis of the underlying causes of dementia. A diagnosis of absolute certainty cannot be made by clinical evaluation alone.

About Us

The Neurodegenerative Disease Brain Bank (NDBB) was established in 2008 and serves as a repository for nervous system tissue donated for research purposes. The NDBB is committed to advancing the understanding of neurodegenerative disease by performing comprehensive neuropathological characterization of patients who participated in clinical research during life and by providing tissue to leading investigators worldwide.

The Neurodegenerative Disease Brain Bank (NDBB) was established in 2008 and serves as a repository for nervous system tissue donated for research purposes. The NDBB is committed to advancing the understanding of neurodegenerative disease by performing comprehensive neuropathological characterization of patients who participated in clinical research during life and by providing tissue to leading investigators worldwide.

Neurodegenerative Disease Brain Bank Code of Ethics

Informed consent

Learn More

Contact us to learning more about the NIH EXAMINER project or gain access to assessment materials.

Interested in learning more about the EXAMINER project or gaining access to assessment materials?

Assessments

This page provides a descriptive overview of each EXAMINER measure by domain, along with a brief discussion of administration time.

Domains:


Domain: Working Memory

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Meeting Notes

The External Advisory Committee met regularly to review data and progress of the EXAMINER project.

External Advisory Committee meetings:

  • April 24, 2006
  • November 1, 2007
  • June 24, 2009
  • February 9, 2011

Related Literature

A selective review of the literature was completed prior to commencing study enrollment in 2006.

Introduction

The primary aim of this NINDS-initiated project is to develop a test battery that reliably and validly assesses executive function for clinical investigations and clinical trials that is adaptable across a wide range of ages and disorders.

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