Consider telling your story and connecting with others who are coping with frontotemporal dementia (FTD) or who have lost family members or friends to this terrible disease.

You can email us your story to include here on our site, or you could choose to share your story on the Defeat Dementia Facebook Group (Facebook is an online social media site which lets you talk with other group members, post photos, share events, etc.)

Questions to Consider when Telling Your Story

• How has caring for someone with frontotemporal dementia affected your life? Your relationships? Your job or retirement plans?
• What problems have you encountered in getting help? Have you been able to get information, healthcare and other services when you needed them?
• Tell us about other aspects of your life. For example: What you do for a living or are you a student or retired? Are you married? Do you have children? Where do you live? What is your highest level of education? What are your hobbies or interests?
• What has been most helpful to you as you have worked to cope with the difficulties of caring for someone with FTD?
• How has the UCSF FTD team been helpful?
• Is there anything else that you would like to say?

Instructions for submitting your story to the UCSF Memory and Aging Center:

1. Stories should be written from your perspective.
2. Video segments are limited to 10 minutes and 100 MB. We accept video files from most digital cameras, digital camcorders and cell phones in the .AVI, .MOV, .WMV and .MPG file formats. (Don't include these with your email, we will arrange to get them from you).
3. Pictures should be no larger than 5 MB (5000 KB) (you can include these with your email).
4. Please review these Terms and Conditions and acknowledge in your email your agree with these terms and that you grant the UCSF Memory and Aging Center the right, but not the obligation, to display my story on its website and use it for legislative, educational and media purposes to help other family caregivers.
5. Send your story to Caroline Latham, clatham@memory.ucsf.edu