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Early Diagnosis of Human Prion Disease

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What is involved?

  • Testing: History and physical neurological examination, lumbar puncture, neuropsychological testing, MRI of the brain, EEG, MEG, nerve conduction study and blood draw. (For deceased and patients who cannot come to UCSF for a visit, we are only requesting the medical records for review and research purposes.)
  • Frequency of visits: Will return for repeat MRI of the brain, EEG and MEG testing depending on the severity and progression of the specific neurologic conditions.
  • Materials needed prior to evaluation: Diagnosis of a rapidly progressive dementia
  • Costs: No costs will be charged for any of the study procedures.
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