Starter Questions You Might Ask Your Doctor

Here are some questions you might want to ask your doctor or nurse. Feel free to add your own questions.

1. Do you know what is wrong? How do you know?
2. What if it’s CJD? Where can I go for information, advice and resources?
3. Should I see a specialist?
4. Do I need a follow-up visit?
5. What tests do I need and why?
6. What do the tests involve?
7. Are there changes I should watch for?
8. When should I call you?

Realize that unfortunately because Creutzfeldt-Jakob disease is rare, many doctors have never seen a case or have little, if any, experience diagnosing or managing CJD. It may be helpful to let doctors know about this website or download this Primer on Human Prion Disease before your next visit.